论文标题
优化DES PARCOURS患者倒入lutter conteconte de诊断患者de De De De De De De De rares Rares
Optimisation des parcours patients pour lutter contre l'errance de diagnostic des patients atteints de maladies rares
论文作者
论文摘要
在法国患有罕见疾病的患者必须平均等待两年，然后才被诊断。对于卫生系统和病理可能恶化的患者，这种医疗徘徊都非常有害。存在有效的罕见疾病参考中心网络（CRMR），但通常将这些结构引用为时已晚。我们正在考虑对患者途径进行概率建模，以创建一个模拟器，该模拟器将使我们能够创建一个警报系统，该系统检测出徘徊的患者并将其引用到CRMR，同时考虑与这些决策相关的潜在额外费用。
A patient suffering from a rare disease in France has to wait an average of two years before being diagnosed. This medical wandering is highly detrimental both for the health system and for patients whose pathology may worsen. There exists an efficient network of Centres of Reference for Rare Diseases (CRMR), but patients are often referred to these structures too late. We are considering a probabilistic modelling of the patient pathway in order to create a simulator that will allow us to create an alert system that detects wandering patients and refers them to a CRMR while considering the potential additional costs associated with these decisions.
